First off, the nerve block didn't work like how it did during the trial. We then guessed it needed the assistance of the baclofen pump to get full benefits. So that dissapointed me and I was left with a numb foot that didn't work still.
One of my SPS friends messaged me saying that her doctor didn't want to give her a permanent nerve block because it would give her complications such as really bad pain that could not be reversed, her legs would become non functional without braces and a lot of support, and it was too risky. I replied that mine went well and I wasn't getting any pain.
Spoke too soon.
I've been having charley horses in my calf for about a week. It hasn't been long at all since I've had my nerve block. I got if about two weeks ago. They keep getting worse and worse and curently, I'm at the point where I can't stand up or walker around without getting severe charley horses. I go to the bathroom and my leg is extended out of course since it doesn't bend and I even get them there. When I get up to flush the toilet and then wash my hands, it kicks in with full force and my short walkering distance to my room is awful.
I was going to shower this morning, but it didn't happen because of the pain.
I got my breakfast delivered up to me today because going downstairs and preparing my food, I didn't even want to think about it. Breakfast was the only meal I was able to prepare for myself previously.
Not only am I having calf issues, my foot is acting up on me too. I describe the pain in my big toe as being stubbed, the arch of my foot as feeling like it's burning especially if my other foot or something else comes in contact with it, and my heel gets horrible radiating pain that lasts for about 10 seconds but then keeps returning shortly. All the while, I feel my foot muscles being pulled because my foot is still curled up.
The worst is my calf charley horses because they happen all the time when I'm not in my bed. My foot acts up not always, but frequently.
The baclofen pump is used for pain for a lot of patients, so I am hoping so hard that it will take away these new pains. Because if not, I have no idea how I'm going to function the little amount I was able to.. let alone learn how to walk again after my tendons get lengthened and then I get my muscle memory back.
Right when I thought I was on the rise finally, this is scaring me. Bed bound is me. The pain in my bed is dull and manageable but the moment I get out, prepare for non-stop grimacing and "owwwwww....!!!!"ing.
For 15 months I had what we describe as a charley horse x10 in my quads, hamstring, whatever muscle is in front of your shin and goes down to the front of your foot, and Achilles. The worst time of my life by far. It was unfathomable and just complete hell. I was just lucky to not have it in my calves too.
Well now I do.
If the baclofen pump doesn't rid me of this pain, hang tight (literally), Kayla, for 8 months of more severe charley horses. At least the 15 months got me prepared for this but of course I don't want to go through these again.
My mom thinks I'm getting this pain possibly because my muscles are finally moving, but they're not?
We'll see.
CAN'T WAIT FOR THE 27th OR FOR WHENEVER I GET MY PUMP TURNED ON.
