I'm really behind on my blog posts--these things are always dreaded. But this one is a must and I will not flinch to make a post about it. It is the sweetest and most unexpected thing I read this morning. Left me speechless and asking my mom, "Who ARE these people?!?" I read it slowly and retained it and soaked in all the love, detail and effort put into it. When you reach purple highlighted text, you will be the utmost shocked. I still can't believe these two. REAL angels.
I went to the Drake Center this morning to get my Baclofen flow increased already--5 days post-op.
It was so cool the things I learned and experienced but I will get to that in a different post. Who knows when it will be up honestly.. with me.
First off, since the privacy settings on Facebook wouldn't allow anybody to see these four next photos but me, my mom, and Mason Dance, mama Terri Piening, bought--when we first started selling my Stiff Person Syndrome Bracelets-- $100 worth of bracelets and gave them to the dancers at Brittany's studio.
That was a huge blessing and surprise when my mom came home from work and told me this. Mama Terri, you are too much.. too kind. Enough is enough ;) But nope. She keeps giving and supporting and kept giving and supporting even before this instance.
How?
Angel on Earth.
Last night my mom came home and I was really tired. I've been sleeping so so much after the surgery. I said I was going to go to bed early.
Well, when I woke up this morning to my mom wanting me to get up and get ready to go tot the Drake Center, I noticed my hot pink and white polka dot bag I had put a bunch of my Stiff Person Syndrome awareness bracelets in to be delivered to miss Brittany Piening was back on my bag. I saw something coming out the top of it, so I pulled it out in my dreariness, but then I felt that it had texture inside. I then knew there were pictures inside. I thought What did this girl do now?! <3 <3 <3 I saw this.
Rare Disease Day. She had surgery December 30th after she blew out her knee during Nutcracker dress rehearsal and couldn't preform for the real performances. It was heartbreaking for her and mama Terri Piening. We went to see how she was doing after her surgery.When she and I were together with some of her dance friends and some former customers of mine that I'd still be seeing if I could still work, she asked if there was a day to commemorate Stiff Person Syndrome. I talked about how, since it's so rare, Rare Disease Day was coming up. She asked what it was about and I told her commonly people wear jean to show support since the ribbon for Rare Disease Day is jeans (it's in our genes). Then she proceeded to ask what my favorite color was--purple. I could tell she had something up her sleeve and she asked if I could write something for her school with 1,800 students so they could hear over the announcements about Rare Disease Day and Stiff Person Syndrome and give donations to Brittany if they wanted. I forgot I still had a TON of my bracelets laying around so I mentioned those and that those should be distributed if someone donates $5 (since they're $5 each). So we kind of had a plan going and here is darling Brittany, sweet as can be like her mama, crippled and having missed out of a large performance at her new studio, helping and thinking about this big plan and getting super excited for helping another cripple--a disabled.
Broadcasting that they were selling these and including information about Stiff Person Syndrome on Facebook <3 Brittany and mama Terri both :D
Brittany and a group of her friends wearing purple and jeans for me on Rare Disease Day :D
Like mother like daughter.
Speechless.
And this precious, beautiful girl is only 14.
How?
Angel on Earth
Oh yeah and this! For us to reserve for a foundation.
From $5 bracelets in basically a week's time!
YES!
"GET MORE G<3<3DIES!"
We still have pink and grey bracelets, red and black UC bracelets, grey and red Ohio State bracelets, and maybe a couple lime green and white bracelets. :)
Anyway,
I asked my mom if she read it while she was at work. She said she was crying and had to put it down.
That would be my reaction if my emotions were wired like most. These things just leave me flying in the air and speechless. I cry when I'm frustrated and lost in general.
I'm cherishing this and my Piening Angels until we're all Angels together above.
And I will still love and cherish them then.
This deep love has been present for far too long. And they were just my customers once or twice!
Always here for you in return and watching you shine miss Britt.
Lovely, darling little sweet angel baby you are <3
With the Northern Cincinnati Youth Ballet (NCYB) girls! LOVE THEM!
Britt and I are next to each other.
pre-op
post-op
Juliana and Marlyna tagged onto the purple and jeans too as we established the plan this day and offered to help.
Table of sweetie pies <3
On the rise again.
Still being the most amazing and selfless dear.
Thank you Brittany. You are my sister, my love, my heart.
Same goes to you, mama Terri.
<3
Another goofy Frisch's date soon??
:D
